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How to Deal with Hearing Loss in Alport Syndrome


2012-10-16 17:25

How to Deal with Hearing Loss in Alport SyndromeHearing loss is commonly seen in alport syndrome. As it can affect the patients’ normal life, it is very important to deal with the condition effectively.

Significant hearing loss is more common in males than in females. It can develop in 80~90% of affected males by the age of 40. In general, hearing loss in affected females tends to occur later in life than in males and also relatively mild. Both males and females with autosomal recessive alport syndrome have the same risk of developing hearing loss. In autosomal dominant alport syndrome, hearing loss tends to develop relatively later in life.

How to deal with hearing loss in alport syndrome well?

As hearing loss is not congenital, so it will not be picked up on routine universal newborn hearing screening. As children grow, they should monitor hearing regularly. Hearing loss can be detected by audiogram in later childhood (6~10 years) in boys with X-linked alport syndrome and in body and girls with autosomal recessive alport syndrome.

Once hearing loss occurs, the following options can help to manage the problem.

* Sign language

* Total communication

* Cued language

* Amplification including hearing acids and cochlear implant

* Communications of technology and various communication can be used.

The above are the main treatment options for hearing loss in alport syndrome.

As for alport syndrome itself, while there is no cure for it, a proper treatment can actually prevent the disease from developing into renal failure completely.




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